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Just what it says, had a resection with loop ileostomy in sep reversed in dec because I couldn't maintain magnesium, after the reconnection pelvic area fistula probs and sepsis returned so I am now 7days post op with a loop colostomy, the output is still...
Started by bigtruck on
, 6 posts
by 4 people.
Answer Snippets (Read the full thread at crohnsforum):
I don't have any advice....
Sounds like you could do with catching a break.
I hope you have a good recovery.
I'd be a mess if I were you.
I've got no suggestions, but I have loads of sympathy and empathy .
You've been through the wringer.
You poor guy.
Oh wow.
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Hi all, I went to schedule my surgery last week, and got the particulars on what was in store for me. The surgeon said he planned on an open LAR, with temp illio. I don't have too much of a problem with that, as he's has to take out 2 tumors, 1 in the...
Started by justin case on
, 13 posts
by 10 people.
Answer Snippets (Read the full thread at colonclub):
Ann Dx with Stage 3C Rectal Cancer might want to consider... .
One less thing to deal with.
And, I didn't mind the ileo much at all.
03/2011: Ileo reversal; clear abdo CT
CEA ~3 months: 2.9 (at dx),0.9,1.7,1.5,1.1,1.3,0.8,0.9,0.9
06/2011.
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Hi all-I am counting down the days to have my ileostomy reversal surgery and have been reading the threads related to your experiences with having this surgery. I am glad to be getting the surgery, but I am nervous about what my recovery will be like....
Started by Airmid on
, 15 posts
by 10 people.
Answer Snippets (Read the full thread at colonclub):
With your reversal! Belle - "Don't Retreat - Reload" DX 10/07 Stage III Rectal Cancer
Surgery 11/17/07; 27 of 38 nodes
Temp Ileo; Reversed 11/08/Perm Colostomy 8/11
12/10 reccurrence lungs & LN's
VATS was one of the many benefits....
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Hi, I am having my ileostomy reversal this Friday...Yeah..but I am obsessing about the recovery and the bathroom issues most people face afterwards. I had colorectal cancer but am now cancer free and feel blessed that I can even get the reversal. My question...
Started by debbied on
, 13 posts
by 9 people.
Answer Snippets (Read the full thread at colonclub):
J-Pouch, temp ileo 6/09, rev to have my reversal, too! Definitely arm yourself with a low-fiber/low-residue diet, information about chemorad 5/10
LAR 8/10, ileo....
Eric, 53
Dx 2/09: RC
Xeloda/Rad
LAR, Col.
The bad ones pretty quick.
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Does anyone find, like me, that they need the opposite of a low residue diet? Ive just spent a week on camp with myw grade six students and the crap food had me incapacitated. Mountains of rice, pasta, potato, pastry, hardly any fruit and veg. I felt ...
Started by Jachut on
, 6 posts
by 6 people.
Answer Snippets (Read the full thread at colonclub):
Almost 2 years post reversal and I still am not figured it out yet, RC 10/09
Stage IIA
Chemorad....
J-Pouch, temp ileo from home I don't trust fried and spicy foods.
Eric, 53
Dx 2/09: RC
Xeloda/Rad
LAR, Col.
And I take 3 tbs of Metamucil daily.
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Okay, from searching this forum for "rectal spasms", looking for some remedy that might help B get relief from the constant feeling of having to "go" following his ostomy reversal, I came upon the term "tenesmus", which seems to fit what is going on with...
Started by pearlgirl on
, 15 posts
by 12 people.
Answer Snippets (Read the full thread at colonclub):
Nd LAR/ temp ileo 6/19/08,
8/4/08> 6 months chemo
ileo reversal 4/09, in remission Actually chemo
ileo reversal 4/09, in remission Don't be too shy about steroids, my rad onco gave me some
Recurrence, now CRC 1/....
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I had a scan on Wednesday and went shopping after and when I got home there was a message to call of course it was too late. My husband was in a panic, I didn't want to think about it. I called in the morning, my onc was leaving town and wanted me to ...
Started by cashmere on
, 11 posts
by 11 people.
Answer Snippets (Read the full thread at colonclub):
Years, congrats Pearl 11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
"Can any one of you by worrying add a single hour to... .
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Please Please Please DO NOT open topic that are over a year old. One got opened again today from 2008. For many reasons we ask that you just start a new topic. Here are just a few reasons why to not revive an old post.
-OUTDATED Information: You would...
Started by eitter on
, 4 posts
by 4 people.
Answer Snippets (Read the full thread at colonclub):
Folfox6 end
03/2011: Ileo reversal; clear abdo CT
CEA ~3 months: 2.9 (at dx history
11/2009: Dx CC
02/2010: colectomy, ileo, ileo-anal anastomosis (j-pouch); pT3N1Mx
10/2010: 12.
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I am almost 5 years from diagnosis and about 3 1/2 years from final treatment and surgery. I did develop severe neuropathy in hands and feet but over the last 3 1/2 years it has gotten considerably better to the point of only being annoying. My concern...
Started by cashmere on
, 15 posts
by 12 people.
Answer Snippets (Read the full thread at colonclub):
9/07
6 mon chemo w/48 hr bag
ileo reversal 5/08
NED since 9/07!!
Just resolved my 13th blockage
Think Stage III
Diagnosed 4/07 at 51
36 rad/24/7 chemo bag
surg 9/07
6 mon chemo w/48 hr bag
ileo reversal, & temp ileo....
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I was responding to CRGuys post and felt my links were worthy of their own post. Maybe just to get to know me better and my journey, where I was and how I came through. Some friends put together this website and my mother picked out most of the music ...
Started by eitter on
, 4 posts
by 3 people.
Answer Snippets (Read the full thread at colonclub):
Temp Ileo, reversal failed in 05/07 after 1m in hospital came out with a permanent colostomy
http.
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