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I don't have children but I was curious as to whether anyone here has had to deal with Infantile Spasms in their children? My best friends 10 month old has been having Severe Seizures which the Drs have pegged as Infantile Spasms, they will be doing an...
Started by TaraF on
, 3 posts
by 2 people.
Answer Snippets (Read the full thread at smartcanucks):
Yikes! I can't offer any insight on the condition, but my thoughts will be with this little one; it's just so scary when you read about babies and young children with problems, especially when they're too young to tell you what's wrong or for you to help... .
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Hi ladies, So my DD was just given the diagnosis of having Infantile Spasms (a mild form). I don;t know if I belong on this board but I don;t really have anywhere else to go. We're keeping this info off Facebook and just family and some friends know but...
Started by KevsLove on
, 3 posts
by 3 people.
Answer Snippets (Read the full thread at thebump):
Infantile spasms....
I would suggest not googling too much.
She is now a little over 2 was on ACTH for a month and it cured the infantile spasms.
My daughter was diagnosed with infantile spasms on her first birthday.
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Started by vcwtwpskl on
, 3 posts
by 3 people.
Answer Snippets (Read the full thread at noblechinese):
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My lo looked like he was straining to poop after meals over the last few days, but it seemed a bit odd to us so today I filmed it. Holy crap, it was much worse today and I think he may have infantile spasms, seizures.
Has anyone had experience with this...
Started by St*rrSmith on
, 11 posts
by 11 people.
Answer Snippets (Read the full thread at babycenter):
Not sure, but he sure is cute! GL! I don't see it clearly if they were spasms.
(hugs).
Milestones? With infantile spasms they do it all the time and usually have delays in meeting milestones to help.
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I would go ahead and call ur pediatrician. could be nothing but with little ones its best just to call ur doc. try to get back on track with ur vitamins and maybe she just strained something. are there any signs or symptoms of pain or discomfort with ...
Started by plymouth on
, 32 posts
by 28 people.
Answer Snippets (Read the full thread at medhelp):
Our 7 1/2 month old seems to also....
I have called symptoms.
They said it is just myoclonus which is probably being caused at different naps, and I don't see any jerking/twitching/spasm while sleeping.
Not seizures or Infantile Spasms.
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6 month old baby girl may have has infantile spasms. Dr said may go on vigabatrin. Any problems or likes and dislikes? Thanks
Started by By NewbornLily on
, 1 posts
by 1 people.
Answer Snippets (Read the full thread at inspire):
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Hello Everyone.
My son is 2 1/2 and has suffered from infantile spasms since age 5 months. We've tried everything with little success. We initiated the diet last week and so far, we are handling everything ok so far. He's tolerating the food, meeting ...
Started by rsmullur on
, 1 posts
by 1 people.
Answer Snippets (Read the full thread at charliefoundationforum):
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Started by DrMaiouxuy on
, 1 posts
by 1 people.
Answer Snippets (Read the full thread at grigsoft):
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Hi everyone! My name is Heidi and I'm a single mom to a 9 year old and my 11 year old who was born at 24 weeks. He had infantile spasms, is completely blind due to retinopathy of prematurity and is tube fed, non verbal and in diapers and requires much...
Started by thedathree on
, 11 posts
by 5 people.
Answer Snippets (Read the full thread at cafemom):
I am not happy.
And I never met anyone who even heard of infantile spasms.
Hopefully something pans out.
I also have a 5 year old that.
Welcome to the group! My oldest is 10 and also had infantile spasms.
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Hi my little girl ava was diagnosed with infantile spasms when she was 6months old now 13mths old. All her results came back normal but last week we were told that she had a deletion in chromosome16 does anyone else have experience with this or have any...
Started by nikitamaclennan on
, 6 posts
by 3 people.
Answer Snippets (Read the full thread at babycenter):
Had infantile spasms so they done a routine bllod trst for genetics and was told there were.
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